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The European Journal of Public Health 2008 18(6):550-551; doi:10.1093/eurpub/ckn014
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© 2008. The Author(s)
This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/2.0/uk/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.


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The European data protection legislation and its consequences for public health monitoring: a plea for action*

Marieke Verschuuren1, Gérard Badeyan2, Javier Carnicero3, Mika Gissler4, Renzo Pace Asciak5, Luule Sakkeus6, Magnus Stenbeck7, Walter Devillé1 and For The Work Group on Confidentiality and Data Protection of the Network of Competent Authorities of the Health Information and Knowledge Strand of the EU Public Health Programme 2003–08

1 NIVEL—The Netherlands Institute for Health Services Research, Utrecht, The Netherlands
2 Institut national de la statistique et des études économiques, Haut Conseil de la santé publique, Paris, France
3 Oficina de Innovación de Sistemas de Información Sanitaria, Consejería de Sanidad, Gobierno de Cantabria, Santander, Spain
4 Information Division, STAKES National Research and Development Centre for Welfare and Health, Helsinki, Finland
5 Department of Health Information, Ministry of Health, Guardamangia, Malta
6 Health Statistics Unit, Department of Health Information and Analysis, Ministry of Social Affairs, Tallinn, Estonia
7 The National Board of Health and Welfare, Stockholm, Sweden

Correspondence: Marieke Verschuuren, PhD, NIVEL—The Netherlands Institute for Health Services Research, PO Box 1568, 3500 BN Utrecht, The Netherlands, tel: 0031 30 2729711, fax: 0031 30 2729729, e-mail: m.verschuuren@nivel.nl

Received October 31, 2007, accepted February 21, 2008

The first 10% of the full text of this article appears below.

The Network of Competent Authorities (NCA) is one of the implementing structures of the Health Information and Knowledge Strand of the EU Public Health Programme 2003–08.1 The NCA became aware of problems in the field of European public health monitoring related to data protection legislation, and established in 2005, on a voluntary basis, a Work Group on Data Protection, consisting of six members of the NCA with a specific interest in the topic, and two staff members from the NCA's Scientific Assistance Office.2 The Work Group carried out an explorative survey among researchers in the European public health field, experts on health data protection and the national Data Protection Offices. This exercise resulted in a (non-exhaustive) overview of problems encountered in public health monitoring, . . . [Full Text of this Article]


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